Hello. I am working on a memoir about giving birth to my daughter, who was diagnosed with Down syndrome, in the Former Soviet Union. The book is also about the grieving process I went through in the first couple of years of her life. It is a work in progress. Here is a short excerpt of my manuscript. What do you think?
Thanks!
It was a bright April morning when I found out my third daughter had Down syndrome. I was standing next to the baby’s incubator in a hospital in Kiev, Ukraine. I was alone and far from home. The doctor who told me stood behind me. Six days earlier, after the baby was born, a sharp needle broke through her placid skin, diving into her vein. A vile quickly filled with her blood. It was closed up, labeled and sent off to be tested for an extra chromosome in her cells.
My husband and I spent the next few days exploring the baby’s body for clues. “Does she have Down syndrome? She doesn’t, does she?” Three tablespoons of her blood held the answer.
I have dreams where I am free falling. I am afraid of heights. They say if you actually hit bottom in your dream that you are dead in real life. When I was told my daughter’s diagnosis, I hit bottom.
My hand rested on the baby’s heel through the plastic. I had yet to hold her. “So what do we do now?” I asked. As adults we want to look together. It is one of the most nagging sins. But I wanted to be a toddler and fling myself on the floor, bang my fists and tare my clothes. I stood silently, blankly. The doctor talked about other health concerns. Her words had no sound. I watched her painted face contort as her mouth moved. It was like I was under water.
You read about mothers of children with Down syndrome. Many accounts show a woman scared of the diagnosis at first. But most women claim instantly love takes over and nothing else matters. I think a lot of them are lying.
I hurriedly thanked the doctor, turned, and ran out of the nursery. I could not stay. If I stayed, I might have turned to salt, like the woman in Genesis who looked back to her city as she fled. A better woman would have bent down and drawn close to her baby. She would have looked into her child’s sleepy eyes and vowed to love her and protect her and treasure her. I reached my room across the hall, sobbing, and fell on my bed. It was like I was placed in a straight jacket.
Instantly, several women surrounded me. One nurse patted my arm. Someone handed me a small plastic cup filled with purple liquid. Each woman carried on her own personal monologue directed at me. Dazed, I gulped down the thick syrup. The doctor who delivered my baby and the diagnosis, stood to my right, closest to my head. “Stop crying”, she told me. “Yes, it is terrible your daughter has Down syndrome. But there is nothing that can be done. Now stop crying!” The other women nodded in agreement, still patting me and saying “neecheevo, neecheevo, it’s nothing, it’s nothing.”



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